Today James is two months old! He celebrated by taking a ride in a swing. James was much more interested in his pacifier and the black netting on the sides of the swing than he was in the fancy toy bar hanging in front of him.
Remember when James’s blood sugar bottomed out the day after his surgery, and Dr. Desrosiers told the nurse to shoot him if he ever used Lantus (the 24-hour insulin) on him again? Well, James’s blood sugar has often been above 500 for the past few days, so Dr. D decided to try Lantus again to bring him down. He gets a half unit a day and regular insulin every six hours on top to further fine tune his sugar. Yesterday’s sugars were the best he has had in a long time, ranging from 408 to 139. Today, however, his readings were 500+ and 37, so Dr. Desrosiers has cancelled tomorrow’s dose of Lantus. James is a moving target, it seems.
Over the weekend James’s nurses forged ahead with the bottle feeding, and he started taking every other feed via bottle, then 3 out of every 4. After all that success I thought it would get easier, but his first two feeds for me today were complete failures. I felt discouraged, especially because I hope to be able to bottle-feed him when James goes home. When the occupational therapist came in for the first afternoon feeding, she noticed the bottle nipple we had been using was the wrong kind. When we remedied that, things went much better. He took 2/3 of his next feeding via bottle.
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His weight has been inching up, but today his anti-diuretic hormone shot wore off before the next one started and he lost a lot of water into his diapers (and Mommy’s shirt). That will most likely drop his weight tonight.
Basically James is see-sawing right now. We are praying for more in the “plus” column.
happy 2 month birthday Baby James!!! we are in prayer for the Lord to strengthen you and continue to uphold your life to grow healthy and strong!!
Praying for you,
Jutty, Abbey, and Bryce
We returned late last night from our trip to NC. We’d like to wish James happy 2 month old birthday. From his pictures he is really maturing from the “newborn” stage and is growing more handsome every day. We are so excited that he is getting the hang of the bottle feeding and is gaining weight.
We read with interest the results of the “family meeting” with James’ medical care team. Lots of very interesting developments as these multiple specialty areas “sort out” James, who is fearfully and wonderfully made. We are so thankful that James is in this superior medical facility with so many services and are confident that he is reciving the best care possible.
Congrats to Grandmother Warren for having the opportunity to give James his bottle feeding!
We know he’s tiny because of his weight chart, but it’s easy to overlook it in the pictures where you’re holding him. HOWEVER, the picture of him in the swing makes it so real! I certainly echo Jutty and Abbey’s prayer for James!