seizures?


Posted on July 28th, 2007 by Abby.
Categories: Our Journey, Our Journey (chronological).

James had a rough day or so the afternoon and night after his surgery. He had several “seizure-type” episodes as the nurses called them, where he would appear to get mad, but his heart rate would drop instead of rise and his breathing would decrease. He would stiffen up, turn pale, and his eyes would be fixed (and not on Mr. Bee). Dr. Albertini knew this was not his normal behavior, so she changed his painkiller from fentanyl and gave him something to reverse its effects. Then she prescribed morphine, which has helped him rest much more easily. She was concerned about the possibility of seizures, so she ordered an EEG (electro encephalogram), which measures his brain wave activity. With 26 leads, most of them connected to his head, he looked pretty sci-fi.

she blinded me with science

So far, the seizures (or seizure-like episodes) seem tied to the fentanyl, and they have decreased substantially in frequency. His last one was sometime on Friday night.

We’re still awaiting the results of the EEG, but the other big news is that he’s finally able to bottle feed again in small feeds.


2 Responses to “seizures?”

  1. Chantel Roberts on July 28, 2007 3:33 pm

    I’m glad the doctors believe the seizures are tied to the painkiller. We continue to pray for James. I’m so sorry he’s had to go through so much his short time here. I pray this too shall pass.

  2. Julie Tyckoson on July 28, 2007 6:12 pm

    I’ve been reading each day, but kept myself from writing. I don’t mean this to sound wrong, but I have been sobered by your lives and the struggles James endures . . . I have been dealing with financial struggles that I never expected. I need to find a new job as I am not making enough money where I am. I have been trying to save to repair my car only to have the engine fail and now I don’t have a car at all. I seem to have come into a heavy load of trouble in the past six months and yet it all seems silly when I examine the trials you all have faced and the unknown troubles ahead. I am hunbled by your honesty, obedience and renewing faith in our AMAZING GOD! I have this habbit of grasping my life wiht one hand while I pretend to give it ALL to God. Your testimony is helping me to pry off that stronghold, one finger at a time. Thank you for your loving faith and the example that you live before us. May these “seizures” cease and may you find yourselves writing from home next weekend.

    I love you all and hope to meet this little one soon!
    – Julie

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